Thursday, December 5, 2019

Alpha-Gal condition causing Anaphylaxis



I think I have finally found out what is causing my anaphylaxis.  It is called alpha-gal.  I just had #54 anaphylactic shock last night.

Alpha-gal syndrome is a recently identified type of food allergy to red meat. In the United States, the condition most often begins when a Lone Star tick bite transmits a sugar molecule called alpha-gal into the body. In some people, this triggers an immune system reaction that later produces mild to severe allergic reactions when they eat red meat.

My symptoms exactly!  The full story at this link.

https://www.mayoclinic.org/diseases-conditions/alpha-gal-syndrome/symptoms-causes/syc-20428608

Signs and symptoms of an alpha-gal allergic reaction are often delayed compared with other food allergies. Most reactions to common food allergens — peanuts or shellfish, for example — happen within minutes of exposure. In alpha-gal syndrome, signs and symptoms typically don't appear for three to six hours after eating red meat.
Signs and symptoms of alpha-gal syndrome may include:
  • Hives, itching, or itchy, scaly skin (eczema)
  • Swelling of the lips, face, tongue and throat, or other body parts
  • Wheezing or shortness of breath
  • A runny nose
  • Abdominal pain, diarrhea, nausea or vomiting
  • Sneezing
  • Headaches
  • Anaphylaxis, a severe, potentially deadly allergic reaction that restricts breathing

Sunday, July 22, 2018


OH NO!  NOT AGAIN
ANAPHYLACTIC EPISODE #51

Had a shock episode last night.  Maybe a walnut.  It has been a while.  This one did not put me in the hospital but was painful.  I am recovering today.  Didn't use the Epi-Pen.  Nevertheless, took all the meds and it just slows me down the next day.
Here are the symptoms of anaphylaxis:
  • Trouble speaking or hoarseness
  • Wheezing & difficulty breathing
  • Tight throat
  • Swollen throat, tongues and lips
  • Loss of consciousness
  • Increased heartbeat
  • Dizziness and anxiety
  • Nausea, vomiting or abdominal pain
  • Itchy skin that swells, tingles or hives

Friday, April 13, 2018



April 2017 was my last Anaphylaxis.  I have gone Vegan and avoid all alcohol.  Occasionally, I ingest some cheese or milk product and nothing happens.  For anyone looking at my Blog this is my cure for Idiopathic Anaphylaxis. Good luck!

Thursday, September 14, 2017

2017 - Anaphylactic Episode 50



NOT AGAIN!
On Tuesday September 12, I went into a weird allergic response to something and was having severe stomach pain.  The stomach issues started the day before and kept me up all night.  Then the next day I knew it was necessary to call an ambulance.  All the symptoms of Anaphylaxis were present except my throat was clear and I did not need the epi-pen at first. 

It was a mild response compared to some of the others.  The doctors and nurses provided care and I went home.  Later in the day it was coming back!  I went back to the hospital fully aware that this was one of those that was going to be slow and painful.  After an hour of waiting for a bed I was able to get the care needed to stop my pain and nausea.  We went home.  

In about 2 hours at home I started to flush and itch.  My throat was closing.  So, I used my epi-pen, took some Benadryl and some more allergy pills then waited it out.  Wednesday, I stayed home from work to recover from the foggy brain from all the meds.  

Today, Thursday I am back at work.  I still have some brain fog from all of the meds. Nevertheless, it is nice to be feeling better.  So, in thinking this through I realized that it must have been the new Probiotic I took on Sunday.  All of my symptoms point to it.  I threw it in the trash.  Hopefully, this will be the last one for a while.

Thought you should know...


Saturday, December 10, 2016

2016 No More Anaphylaxis!!

I have been trying to understand why I kept going into Anaphylactic shock since the first on in December 2012.  It took being without for a month and changing my eating that has solved this and I think I won't be having another one.  Yay!!  If you have Idiopathic Anaphylaxis let me know.  I can help you.

Sunday, December 6, 2015

About Treatment for Anaphylaxis


I was in the hospital for a kidney stone this past week.  The nurses were so wonderful yet surprisingly clueless about the protocol for Anaphylaxis.  They wanted my to have an epi-pen on the table next to me.  What they did not get in my case the first thing I go for is my nausea medicine.  The intestinal pain is really severe in my case.  Nevertheless, I think the nurses should know that they have epinephrine they could put in my IV and not expect me to jab myself when I am at the hospital.  I found out later that I was staying in the Ortho unit.

Number 44



I wonder if Guinness Book has a section for this.  I had my 44th Anaphylaxis yesterday.  It is so hard not knowing why.  I stopped my antibiotics just in case they are causing it.  I hope it doesn't kill me.   It is frustrating.  There are so many things I want to do with the rest of my life.  It is really holding me back!

Tuesday, November 17, 2015

Anaphylaxis #43


I thought it was over!  I am going through my 43rd episode. I have not had one for a few months. Guess this thing is a forever problem. Going to sleep now.

Sunday, May 31, 2015

DIAMINE OXIDASE

Found this Article and it gave me some new hope. I had another Anaphylactic Shock last week. It was #38 in 2 years.  If you need help with yours this is a good article.  Sorry about the language on the cartoon. Not mine. 
Copied here or go to:
http://www.redaspenwellness.com/allergiesboulder/
Last week I went into anaphylaxis shock on the trail on a run by myself.  
(Nothing spells excitement like a little throat closing!) Like I said I’ve had some serious hayfever my whole life and have meandered through Western and holistic health care for relief with varying results. But. Never have I ever flirted with nearly dying as a reaction to my hayfever so once I moved past this sudden anaphylaxis/Epi-pen/steroids/Benadryl cocktail I was “inspired” to revisit options on hayfever management.
This led to lunch the other day with my friend Jen Marshall who is also a nutritionist in Louisville specializing in gut/immune response (read allergies) at Be Balanced Healing. She’s got tricks up her sleeve for allergy management, but she also dropped the words “diamine oxidase“. For those with stubborn allergies or unexplained eczema, rashes, any skin itchies, flushing, headaches, runny noses, brain fog, anxiety, fatigue, blood pressure irregulation, heart palpitations, asthma, digestive issues, sleep issues just to name a few this might be worth a read.
DAO is an enzyme that lives in your gut, and “cleans up” histamines. Histamines are a natural part of your immune system, but obviously some of us might sometimes be less than perfect and we go into overdrive, and some may also simply not have enough of the enzyme DAO (AKA the vacuum cleaner) to sweep up overabundant histamines. This would be known as Histamine Intolerance. Yes DAO is a supplement you can buy. 
But wait why would I be low on DAO you ask? Think everything that we are familiair with that’s shredding apart our guts, like a lifetimes worth of gluten nearly every meal, sugar, the cases of beer you consumed since you got your fake ID in your teen years, over-consumption of dairy (I know this email goes to mainly Bouderlites) and I am not talking about how you’ve “gone clean” in your diet last year and since then you’ve been such a great eater- this kind of damage can take years and may have occured in your childhood, teen years etc. Medications like antibiotics, NSAID’s will decrease DAO, poor digestion and poor poop movements (low peristalisis) can create a pocket of older poopies and create bacteria in the gut that will decrease DAO. Again, isn’t something that gets created because you were constipated last week- this can take years. Maybe as a child your gut was poor, or maybe your entire teen years were spent taking Advil and only now the toll takes its place.
All foods have various levels of histamines (below is a food list of high histamines foods). Yes- everything you eat has histamines in it. What I want to specify here is we aren’t talking about “gluten free” or “paleo” or “vegan” crazes. This is different. Here’s another kicker- you actually don’t need to be allergic to the foods to have the reaction- and this is what makes this difficult for doctors and sufferers to diagnose and discover. High histamine foods + low DAO in the gut= allergic reactions. Now how this pertains to hayfever is that there may be a correlation to how the body can rehabilitate/manage allergies systemically to how deficient the sufferer is with DAO in the gut. Foods like many cheeses and beer, wine, yogurt!, yeast (breads) are high in histamine- and may send your immune system into a high work load- then stupid pollen comes along and blammo- your system can’t deal, you’re flooded with histamines, and now you want to excise your eyes and nose with the nearest samurai sword- or perhaps you choose door #2, anaphylaxis.
pollen
There aren’t many clinical studies out there, but many people claim supplementing DAO has helped them with their unexplained and chronic ailments like I previously mentioned- eczema, rashes, fatigue, the itchies, anxiety, rhinitis, (maybe anaphylaxis if you’re hardcore)- allergy like symptoms.
allergies
Other Remedies: 
Moving forward, a newish remedy that’s exciting on the market is “immuno drops“. These are like shots, but you drop the substance under the tongue instead. This is more affordable and you can skip the repeat (and more repeat) drives to the allergist since you can “drop” at home. From what I have read- these are more effective for children than adults, and possibly not as effective as shots. But these are fairly recent so results are obviously still out. You can be apart of the “droppers” as many medical allergists are providing this option in their office- including the one I’m headed to this week.
There is A LOT of money in Zytrec, Allergra, Benadryl etc so a great solution is not in their best interest and therefor funding for natural things like shots and immuno-drops, understanding DAO, or acupuncture therapies etc isn’t there. And one needs to be very mindful of “results” and who is generating them because Big Pharma does not want a cure to allergies. After all, the going rate of just my Epi-pen is now $400.
Saving the best for last acupuncture can help reduce symptoms. Like anything it helps some more than others. Folks like me who appear histamine loyal for life- maybe not so helpful, but I HAVE treated others VERY successfully to manage their symptoms of hayfever. I’m jealous of each and every one of them too. Repeatedly decent studies (and remember- I’m looking out for objectivity and placebo here cuz otherwise what’s the point?) are coming out about how gosh darn effective moxa (what we burn on the acupuncture points/needles- click here for more) is at boosting the immune system, meanwhile, acupuncture can help reduce inflammation and chill that histamine overdrive. The result? A happy exit out of the office free of itchy eyes and sinus drainage.
Here’s your list of high histamine foods!
Eggs- but I also see this on low-histamine food lists soo…?
Avocados
Spinach
Tomatoes
These nuts: peanuts, walnuts and cashews
Citrus fruits
Aged goat or cow cheeses
Soured foods like sour cream, butternilk
Beer
Wine
Vinegar foods- olives, pickles
Yogurt- this is about bacteria so be mindful of your probiotics- they may actually make you worse if it’s not the ones you need! Lactobacillus casei, Lactobacillus reuteri, and Lactobacillus bulgaricus are reportedly particular ones to stay away from if you are histamine intolerant!
Fermented foods like sauerkraut, beer (again) kombuca (?!)
Cured meats- including deli meats and bacon
Dried fruits- dates, raisins etc.
Yeast- breads

Sunday, May 3, 2015

I found a doctor in Boston that studies mast cells. I asked if he would take my case. Now with 37 Anaphylaxis episodes I am hoping he will take an interest to help me.  Here is his interview with some women experiencing similar symptoms.

Wednesday, April 29, 2015

2015 more episodes!

On Monday 4\27 another episode of Anaphalaxis. This one was very, severe. I had to take extra meds. Will this ever end?  This year 5 episodes. 3 during the month of April. Why???

Thursday, January 8, 2015

Anyone with severe allergies read this!

NEVER BE WITHOUT YOUR ANAPHYLAXIS KIT NEARBY
ALERT: PARENTS AND TEACHERS
1:  Severe allergy that results in Anaphylaxis will result in death in as little as 10 minutes!
>> Teachers & Parents -make sure your student or child has a kit of meds and their Epi-pen close by     at all times. If you forgot it at home go back for it!  If the administration office is far from the classroom the child should carry it in fanny pack or in the teacher's desk.

Parents educate your teachers on administration of the epi-pen and you child's meds.
I have had 32 Anaphylaxis episodes since 12/12.  I start my meds and Epi-pen when I start to flush and hands itch. This helps avoid trips to the ER.


Here is a picture of my kit: 
See content list below


Inside:
Instructions
Business Card
Pill box and bottles:
Imodium
Zophran
Atarax
Benedryl
Steroids
Adult and Junior size Epi-pen


Good site for more information.

Go here for some great info about Anaphylaxis:  http://www.healthline.com/health/anaphylaxis/effects-on-body

Monday, December 8, 2014

Anaphylaxis and Short Term Memory Loss

https://foodallergyfroggie.wordpress.com/2013/04/23/consequences-of-anaphylaxis-memory-and-processing-issues/

I found this link to shed light on my Anaphylaxis and Short Term Memory issues. I realize now that some of my confusion and total lack of short term memory is related to loss of oxygen to my brain when my blood pressure dropped an I was unconscious so many times during the 31 episodes of Anaphylaxis. I guess other people have noticed at this point. At work it is really obvious because I have to keep asking for people to repeat their requests if it more than one.  My concentration is way down and I know I have lost some of my brain power.  If you have had this experience please comment here.

Wednesday, December 3, 2014

Anaphylaxis-Again and Again

I had an Anaphylaxis on November 11.  It was fast moving and I was on the floor with lowered blood pressure and excruciating pain in the first 5 minutes. 
Another one happened yesterday: Dec. 2nd.  Slower moving--It started at 2pm while at work.  I was able to administer my Epi-pen and get all the meds started so as not to get to the point of being on the floor unable to move.  I am back at work today.  Phewwww, feeling better today.



Sunday, July 20, 2014

End the Anaphylaxis episode- The Meds

I use zophran when my anaphylaxis starts.  The zophran is great for taking down that awful stomach pain. Then I take my benedryl, with my allergy meds 6 Atarax and then the epi to rush the meds into my system faster. The benedryl takes down the itching a lot because I take a triple dose. That is 75mg.  The allergist said start all the meds when the flushing starts. I do that and then I have a couple prednisone on hand to keep it all from returning.  This has been working so well that I did not even go to the hospital this time. But with a child I would always go to emergency just to be sure.

Saturday, July 19, 2014

Still going on

On March 15 I had another full episode and a few close calls. Today I had another huge episode.  Taking all my meds when I feel it coming on is the key for avoiding a trip to the hospital.  I keep hoping it will go away but it still keeps trying to take me down. Thank you mom for being with me through this. You saved me again today. Love you.

Sunday, February 16, 2014

Another episode of Anaphalxis

The morning of February 15 3:00am I had another life threatening attack of Anaphylaxis.  There was no time to get my epi-pen. I was taken by ambulance to the local hospital.  They give me the worst care to date for my condition.  No one understood my rare condition.  They waited two hours before giving me what I needed to reduce the agony of my stomach pain and pounding pain in my head. I had the shakes really bad and none of them would came in see that I was in severe shock. This was a terrible experience.  Unfortunately this disgusting hospital is the only one near my new home.  I thought I was going to die for sure this time. My blood pressure was so low I was not able walk or open my eyes. The EMTs had to carry me downstairs to the ambulance and banged my head against the wall. This is my 23rd episode.   I am still here. Yippee!

Monday, July 29, 2013

20th Episode of Anaphylactic Shock!

Saturday, July 27, 2013
Another visit to the ER for Anaphylaxis. 
I went to Sutter Hospital this time as my symptoms started at the Movie theater nearby.  This is my 20th attack.  No cure in site.  It happened less severely from home on Thursday July 25th and I was able to contain it from home using my Histamine blockers from the doctor.  It is always very clear when I need to use my Epi-Pen and head for the hospital since the symptoms come on strong and fast. I drove myself to the hospital know it was about a mile from the theater.  Walked fast into the ambulance entrance and fell on the floor. 

Could not open my eyes or move my legs as usual.  I was able to drag myself with help onto a floor level gurney.  Felt like a drama queen yet there was not choice. The ER doc and nurses were great!  They gave me the Zofran right away and it was such a big help.  Sometimes the hospital ER will do everything else first and make me suffer with the nausea, even though I am begging for it and the pain in my stomach is so painful they don't do it and I am not sure why.  

It all begins with intense sweating, painful stomach and nausea, itching hands and redness from my head to the bottom of my feet.  When I wait to long I loose the use of my hands and feet, plus cannot open my eyes.  If only the doctors could find out why.  More tests this week.

Didn't use my Epi-Pen.  Scolded by the Doctor for driving and not using the Epi-Pen!





 
Identifying Anaphylactic Shock!
Anaphylactic shock is the most dangerous of all allergic reactions. A decrease in blood pressure leaves the brain starving for oxygen. Often, there will also be inflammation in the lungs resulting in severe shortness of breath. The combination is deadly. Anaphylaxis is a severe allergic reaction that involves more than one body system. A typical allergic reaction may cause itching or some wheezing in the lungs, but an anaphylactic reaction will cause both or a combination of several other less common symptoms.

Answer: There are two important ways to tell if someone is suffering from anaphylactic shock. First, by identifying the symptoms of anaphylactic shock. Second, by identifying the exposure to an allergen that causes anaphylactic shock.

Symptoms of Anaphylactic Shock
Anaphylactic shock is primarily an allergic reaction. To identify anaphylactic shock, first look for symptoms of allergy:
  • Itching
  • Red, raised, blotchy skin (hives)
  • Wheezing
Anaphylactic shock happens when the victim shows signs of low blood pressure:
  • Confusion
  • Weakness
  • Pale color
  • Unconsciousness
Anaphylaxis or anaphylactic shock often have symptoms of shortness of breath:
  • Unable to speak more than one or two words
  • Sitting straight up or with hands on knees
  • Gasping for breath
  • Pursing lips to breathe
  • Using neck muscles to take breaths
 

Wednesday, May 22, 2013

Anaphylaxis is a severe, life-threatening reaction that can affect all age groups
  • The severity of previous reactions does not predict the severity of subsequent reactions
  • Intramuscular adrenaline is the first-line treatment for anaphylaxis, with intravenous adrenaline reserved for unresponsive anaphylaxis or circulatory collapse
  • Early use of adrenaline in anaphylaxis is associated with improved outcomes
  • Any patient with a systemic allergic reaction should be considered for an adrenaline auto-injector with emphasis on identifying at risk features
  • There is a clear need to improve the education of both patient and physician on the use of, and indications for, adrenaline auto-injectors